Inspiring Stories: Brittany Gooding

Inspiring Stories: Brittany Gooding

  I’m 34 years old and have Chiari Malformation, Ehlers-Danlos syndrome, and Pseudotumor Cerebri.  I have always been a clumsy kid, but starting in my 30’s I noticed it getting worse.  I would frequently trip over my feet and my balance was off. ...
Inspiring Stories: Joe Hogan

Inspiring Stories: Joe Hogan

As a child, Joe Hogan couldn’t jump and run like the other kids.  He wasn’t sure why, and assumed he was weak in general.  His experience with weakness in his legs matched that of his other family members.  It wasn’t until his early 20’s that his aunt was diagnosed...
Inspiring Stories: Thea Currier

Inspiring Stories: Thea Currier

My name is Thea Currier, and I’ll be 60 years old this year. I have been active all my life with ice skating, lifting weights, hiking, going for long walks, and I’ve run two marathons. I am currently being treated for my 4th type of cancer (leukemia) and...
Inspiring Stories: Heather Collins

Inspiring Stories: Heather Collins

Throughout her childhood, Heather fell often, was clumsy, had lower leg and ankle weakness, and foot drop.  These symptoms were overlooked, and she was never given an official diagnosis.  It wasn’t until she was in her 30’s that she was told she had a hereditary...
Inspiring Stories: Madeline Jarrett

Inspiring Stories: Madeline Jarrett

Madeline has Charcot-Marie-Tooth (CMT).  As a result, she has had mild foot drop since she was in middle school.  She first began experiencing more significant foot drop when she was 16.  This was after she dislocated the patella in her right leg for the first time...
Inspiring Stories: Silas Stuck

Inspiring Stories: Silas Stuck

Silas was born with a rare chromosome deletion.  It is so rare that it doesn’t have a name, it is called 2p 12-11.3 deletion syndrome and there is a gene in this deletion that causes spastic paraplegia.  He walked late and is still learning to talk.  Due to his father...