Inspiring Stories: Heather Collins
Throughout her childhood, Heather fell often, was clumsy, had lower leg and ankle weakness, and foot drop. These symptoms were overlooked, and she was never given an official diagnosis. It wasn’t until she was in her 30’s that she was told she had a hereditary...
Inspiring Stories: Madeline Jarrett
Madeline has Charcot-Marie-Tooth (CMT). As a result, she has had mild foot drop since she was in middle school. She first began experiencing more significant foot drop when she was 16. This was after she dislocated the patella in her right leg for the first time...
Inspiring Stories: Silas Stuck
Silas was born with a rare chromosome deletion. It is so rare that it doesn’t have a name, it is called 2p 12-11.3 deletion syndrome and there is a gene in this deletion that causes spastic paraplegia. He walked late and is still learning to talk. Due to his father...
Inspiring Stories: Kay Ashton
Kay Ashton lives with neurofibromas (NF) – a genetic condition that causes tumors to grow on the nerve endings. The NF led to scoliosis (curvature of the spine) and now as a result of these two conditions, Kay has foot drop. She also happens to have fallen arches...
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