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Raising a Son with a Rare Disease: The Clayton Journey

Raising a Son with a Rare Disease: The Clayton Journey

The following is a blog post written by Darla Clayton, the mother of TeamUP Co-Captain Trent Clayton. Both she and Trent have CCM, or Cerebral Cavernous Malformations, which is a rare genetic disease that causes brain and spinal tumors. Recently they took part in a...
“My Miracle Boy”: The Story of Tasha & Zak

“My Miracle Boy”: The Story of Tasha & Zak

After years of infertility I was elated to finally become pregnant naturally, and I breezed through my pregnancy without a single complication. I utterly glowed and loved every second of carrying Zak, my miracle baby, to term. Unfortunately, labour and delivery are...
Every Step Beats MS: Gene Caffrey’s Story

Every Step Beats MS: Gene Caffrey’s Story

My Multiple Sclerosis (MS) story started in November of 2009. I was competing in the 2009 Florida Ironman in Panama City, and after the first 1.2-mile lap of the swim I got out of the water and couldn’t feel my legs.  They went numb and had bad cramps. I thought it...
CMT Warrior: Laura Werlinger’s Story

CMT Warrior: Laura Werlinger’s Story

Hi!  My name is Laura Werlinger and I live in Jaffrey, New Hampshire with my husband John and my dog Dexter.  I am a recovery coach/peer recovery specialist for a recovery center and am working on obtaining my Certified Recovery Support Worker certification from the...
Guest Blogger’s Tips: Finding “Mr. Right Boot” (for AFOs)

Guest Blogger’s Tips: Finding “Mr. Right Boot” (for AFOs)

  READERS’ NOTE: This post has been updated to include MEN’S BOOTS, TOO! See end of this post for Men’s boot options for AFO-wearers. Just in time for fall, we want to share an article written by GetBackUPToday friend and fellow blogger, Lainie...